What to do when you have a Crohn’s setback?
So, I was all the way down to a 5 mg dose of prednisone last week and the inevitable happened; I started feeling sick. I had been feeling pretty good since my late December flare-up, other than some bad muscle weakness and joint pain, which I knew I could be from Crohn’s or the medication itself. I had a good amount of energy and was able to do most of the things I had scheduled. I wasn’t nauseous; I didn’t need Percocet.
Then I was on the way to lunch with a friend one day recently. We met halfway, about a 45-minute drive for me, and I noticed — just slightly — those telltale weird feelings I get at the start of a flare-up. I ate lunch with no problem, but by the time I got home, I had to go right to bed — where I stayed for two days.
My doctor and I determined that I needed a 20 mg dose of prednisone to cover the flare, which is actually low for me at the beginning of a flare. I was happy to start taking it.
But I was sad, too, because I had worked so hard to get my prednisone dosage way down. Sad because it meant the Stelara probably is still not working, and within three days, even though I was barely eating anything, I had gained so much weight that my pants were tight, making me even more uncomfortable.
I was able to get out of bed pretty quickly this time, since I caught the flare-up at the very beginning. I went to see my doctor and, as usual, we debated prednisone and Stelara and what else there was. As usual, my options are pretty bleak.
Read full article: A Crohn’s Setback Leaves Her Wondering About the Future
|Read Full Article: A Crohn’s Setback Leaves Her Wondering About the Future|