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As Someone with MS, I’m Tired of Keeping Up with Appearances

Columnist Jamie Hughes addresses the issue of keeping up appearances and argues for transparency in the day-to-day management of MS.

Living with MS can sometimes feel like you’re performing a one-woman (or man) show. Think about it. How many times have you pretended to be OK when you didn’t feel so hot? Have you ever shown your loved ones a brave face instead of upsetting them? Ever caught yourself acting resolutely when, in reality, you were utterly terrified? That’s what I mean.

I thought about appearances this week when a friend showed me something called “Not Fried Chicken,” a creation of Life Raft Treats in Charleston, South Carolina. (Click the link and look at it. I dare you.) It looks like a bucket of chicken drumsticks, but it’s actually ice cream. They take waffle-flavored ice cream, wrap it around a chocolate-covered cookie “bone,” and cover it with caramelized white chocolate, cornflakes, and waffle cone bits. A few days later, I came across the artwork of Kate Jenkins, who creates knitted and crocheted works of shellfish and crustacean art that look even tastier than the real thing. Unbelievable, right?

There’s something delightful about biting into what you think is a chicken leg and coming away with a mouthful of cold, creamy goodness, or being able to perpetually enjoy a shrimp cocktail with your eyes. But, if I’m honest, there’s something off about it, too, an unsettling incongruity that leaves you unable to trust your senses for a while.

Read on: As Someone with MS, I'm Tired of Keeping Up with Appearances

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