A Crohn’s diagnosis doesn’t just affect one person, it affects the entire family.
Crohn’s didn’t just happen to me. It happened to my family, too (though, they may not have realized it at the time). I know I certainly didn’t.
It took a period of years for me to understand how my illness affected my husband and kids. I probably still don’t fully get it, though I try. In last week’s column, where I discussed taking care of my husband after his cataract surgery, helped to remind me how hard being a caretaker can be. I was happy to take care of him, and relieved, in some way, to be able to do it. It made me feel less guilty about being the one who always needs to be taken care of.
It’s hard work to be the caretaker. I’m able to see how much my husband has sacrificed to be the one who brings me to colonoscopies and endoscopies, and drives me into a city I’m not that comfortable in every eight weeks for my doctors’ appointments. When I’m bedridden, sometimes he has to drag himself up and down the steps bringing me cold drinks with lots of ice, or my medications. Or he has to stop at the pharmacy to pick up another medicine we’re going to try. It has deeply affected his life.
My daughters, too, have been affected. It’s hard to watch Mommy lying on the bed in pain, being uncomfortable or taking medications that make her sleepy, and out of the loop. It’s hard for Mommy to sometimes miss things that are important to you. But last week I had a real eye-opening moment at how my illness has affected those around me.
Read full article: Chronic Illness Like Crohn’s Disease Affects the Whole Family
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