According to a new survey, patients with Crohn’s disease find that a diagnosis is difficult to obtain, often requiring at least 10 doctor visits prior to a diagnosis.
A nationwide survey of Crohn’s disease patients found a considerable delay in diagnosing the disease, with patients reporting multiple visits with healthcare professionals and numerous diagnostic tests before receiving a proper determination.
In fact, 44 percent of respondents to the survey — involving 2,018 people across the U.S. and conducted by Health Union from Oct. 29, 2015, to Jan. 10, 2016 — reported needing at least 10 medical visits to get a correct diagnosis, and 59 percent were seen by three or more healthcare professionals. Three out of every four of these Crohn’s patients also reported their disease was at a moderate to severe level by the time treatment began, the company reported in a press release.
The survey also found that patients would have liked more detailed disease information at diagnosis, and consequently were left uncertain as to their ability to perform certain tasks at work, to exercise, and even to engage in social activities. Overall, results showed that the medical community might not be sufficiently informed about the disease or understand its impact on patients’ lives.
Health Union is a provider of digital, social, and mobile platforms meant to create and engage patient communities. The company’s newest online community serves those with Crohn’s, a chronic and inflammatory disease of the digestive tract.