A woman with MS shares how she lives her life despite the challenges of her disease.
I can describe myself with a myriad of words: kind, funny, smart, quirky, and stubborn, to name a few. So many words are descriptive of my persona; I almost felt safety among them.
I have always preferred paved road to dirt; my place was to shine the already lain footprints. Or was it? Discovery comes when we leave our safe spaces for parts unknown. It was in these parts that I discovered I am adventurous.
My mother invited me on a 10-day Alaskan cruise to celebrate a milestone birthday. Any misgivings or preconceived fears diminished almost immediately. As we sailed under the Golden Gate Bridge and out to open water, an adventurer was born.
I have an affinity with water. The seas soothe my soul. While I participated in excursions and onboard activities, it was outside that I came alive. A familiar flame I had allowed to extinguish suddenly reignited. My spirit shone brighter than the sunlight against the glaciers.
I craved more, and those 10 days did not disappoint. The joy I felt at simply being there heightened every experience. I had shown up not despite, but in spite of, my doubts and fears. Having multiple sclerosis did not hold me back. No, that was my doing. In allowing myself to risk I became hyper-appreciative for each and every encounter. I was living in technicolor.
The thing about color is that you can never go back to monochrome. Once you have witnessed the beauty, you want to keep your world enhanced. A beautiful life is a life lived, and that looks different for every individual. For me, living means leaving my comfort zone, taking risks, embracing the unknown, and allowing growth.
Nothing worth having comes easy, and those 10 days were not without trials. I fatigued easily, and experienced heightened pain and swelling along with a few sleepless nights. Nevertheless, I planned accordingly. I enjoyed quiet time in my stateroom as I knew fatigue would occur. I brought the appropriate modalities to help with the inevitable exacerbations of pain and insomnia. I reveled in my recently discovered passion for photography and thoroughly cherished the time with my mother.
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