Patient Interviews Her Husband About Crohn’s Disease

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Patient Interviews Her Husband About Crohn’s Disease

The personal story of someone with Crohn’s disease.

I talk about myself enough here ― my struggles, my frustration, my pain. I thought it might be interesting to interview some of the people in my life and get their views of what it’s like to live with someone who has Crohn’s disease.

First up is my husband.

1.What do you remember about the year before I got diagnosed?

Not much. It must have been more normal for you than it is now. I don’t remember you without this, but I know it wasn’t as long as I think.

(My commentThis is interesting because I was sick as a dog the year before I was diagnosed. I was in bed a lot and lost a ton of weight. I frequently needed help taking care of our daughters, who were just 3 and 6 then.)

2What do you remember feeling like when I was diagnosed?
I didn’t know much about it at the time. I really didn’t know the path you would take. When someone is initially diagnosed with any chronic disease, you never know what course it will take.
(My comment: I had no idea it would be so serious. I just thought I could take come medication and be fine.)
3. What has it been like living with me sick for the last 17 years?
Not easy at times. Having a chronic disease myself, I understand things, but Crohn’s is different. It affects you more internally than mine. I have pain, but I am not doubled over in pain or having to use the restroom every hour. My arthritis is mostly controllable with shots and drugs, but it seems that Crohn’s is not an easy one to cure.
(My comment: My husband has an auto immune disease called psoriatic arthritis that we knew about before we were married. Mostly, it’s just an annoyance to deal with, but doesn’t cause the kind of everyday pain and suffering that IBD does.)

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