An online research project seeks input from those with multiple sclerosis.
Have you ever wondered how your MS experience compares with others? Your ability to go out and do things? The therapies you’ve used? Your symptoms? Your age and ethnic background?
Researchers from the Accelerated Cure Project for Multiple Sclerosis have been collecting this kind information for nearly two years from MS patients who’ve volunteered to fill-out online surveys. Though the group of patients is small, so far, their data is fascinating. For example, you can go to the iConquerMS.org website and register to see graphs outlining the ages, employment status and other demographic information about the unidentified volunteers. Or, you can see how they’ve answered questions about their social activities, sleep disturbances, mobility issues, and so on.
Patients get a say in the research
The goal of the project is to give people living with MS the ability to play an active role in research about the disease. This is done by giving them a way to securely provide health data for researchers to compare, to propose research topics that are important to the patients themselves and to become informed about the research process and specific studies. “Our ambitious agenda is nothing less than establishing a new model for research in multiple sclerosis,” says Robert McBurney, PhD, president and CEO of the Accelerated Cure Project for MS.
Read full article: Volunteers Needed to Make MS Research Project Meaningful
|Read Full Article: Volunteers Needed to Make MS Research Project Meaningful|